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Upcoming Events
- May 09, 2025, 5:30 PM EDT – May 11, 2025, 12:00 PM EDTToronto (venue TBD), Toronto, ON, CanadaA full day CdLS Clinic for Canadians with a CdLS Diagnosis. You will be seen by CdLS experts including gastroenterology, ophthalmology, genetics, psychiatry, physiotherapy, speech & language pathology and many more. We will be providing education sessions for families throughout the day.
- May 10, 2025, 10:00 AM – 4:00 PMHilldale Lutheran Church - Thunder Bay, 321 Hilldale Rd, Thunder Bay, ON P7G 1Y7, CanadaCome join us for International CdLS Awareness day in support of the Canadian CdLS Foundation on May 10th from 10-4pm at Hilldale Lutheran Church for Finnish Pancakes & Bike Ride.
- Multiple DatesFeb 12, 2026, 7:00 PM – 10:00 PM ESTGoogle MeetCome join fellow CdLS parents and families to share, listen and be with others who have experienced the loss of a loved one with CdLS on International CdLS Remembrance Day. Facilitated by the Canadian CdLS Foundation staff.
- Postponed due to weatherLocation is TBDCome join fellow CdLS families for a casual get together to share, support and have fun together. Learn about resources, the clinical advisory team and CdLS clinic and the wealth or experience and tips and tricks from fellow families. Refreshments and snacks provided. Venue will be in Hamilton.


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