
Strategies to accomplish our mission
Find families impacted by Cornelia de Lange Syndrome (CdLS). Connect them to supports, resources and community.
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Raise awareness and improve early diagnosis of CdLS and other rare isolating conditions.
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Empower families to care and advocate for their rare family member.
Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS.

WHO WE ARE
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.